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What is a primary caregiver?

Written by: Alyssa Goulet, Contributing B2B Content Writer
Published: August 14, 2024

Caregiving often starts gradually. It could be simple acts of assistance for a loved one. But those responsibilities can turn into ‌big commitments, and many caregivers may not recognize that until full-time care is necessary.

This topic is becoming increasingly important, as the need for caregivers is expected to continue to grow as the US older adult population does. Five years ago, there were 7 potential family caregivers per older adult. By 2030, it’s estimated, that number will be down to 4.

In this post, we’ll define the responsibilities of primary caregivers and address common challenges. We’ll also help you distinguish between the roles of primary and secondary caregivers.

What is a primary caregiver?


A primary caregiver is responsible for managing the daily needs of someone else. This happens when the person is unable to fully care for themselves. The caregiver oversees aspects of the care recipient's well-being.

This individual takes on duties based on the care recipient's condition. Responsibilities could include things like personal care and medications. A primary caregiver is an advocate and decision-maker. It's common for this person to be a family member, but friends or hired caregivers can take on this role, too.

Who qualifies as a primary caregiver under Medicare rules?


Understanding who qualifies as a caregiver under Medicare rules is critical for accessing support benefits. According to Medicare guidelines, Medicare Part A (Hospital Insurance) and/or Medicare Part B (Medical Insurance) covers eligible home health services as long as the homebound person needs part-time or intermittent skilled services.

This doesn’t typically cover circumstances where family and friends are helping with tasks. Rules vary from state to state, however. It’s important to check regulations in your location to find out if you qualify as a caregiver under Medicare.

Primary versus secondary caregivers


The distinction between primary and secondary caregivers comes down to the level of responsibility and the time commitment. What is a caregiver in simple terms? Primary caregivers take on day-to-day care tasks and may have decision-making authority. In contrast, secondary caregivers provide additional support with specific tasks that the person receiving care may otherwise struggle with.

Primary caregivers often immerse themselves in all aspects of the care recipient's well-being. The tasks that secondary caregivers may help with include errands and respite relief. Role clarity between primary and secondary caregivers helps to avoid overlaps or gaps in responsibilities.

For example, almost half of people providing care for an aging adult are doing so at least several times a week, and 24% are doing so every day. It’s also common for needs to increase as a person ages or their condition progresses. That means that those who start as part-time or secondary caregivers may eventually find themselves in a primary care role.

Understanding the difference between these 2 roles and what’s required is important. This makes it easier to prepare yourself for the tasks at hand and the time commitment required to look after the person needing care.

What are the 4 types of caregivers?

Family caregivers: Relatives or close family members acting as unpaid caregivers for loved ones. This group takes on a lot of personal sacrifice and emotional investment.

Informal caregivers: Friends or volunteers offering care assistance without formal training or compensation. Their support supplements gaps in professional care.

Formal caregivers: Trained professionals employed by healthcare facilities or private households. These employees deliver hands-on care services and require payment.

Professional caregivers: Certified medical professionals like nurses or home health aides. These people have specialized credentials to manage complex medical care.

Each caregiver type can play a role in meeting the needs of care recipients. Caregiving families often blend the contributions of multiple caregiver types.

Common challenges of being a caregiver

While it is rewarding, caregiving comes with challenges that take a toll. The constant demands can, for example, lead to struggles with mental health, such as stress and burnout. According to data from the CDC, 15% of caregivers reported experiencing 14 or more mentally unhealthy days in a month. Also, 18% reported experiencing 14 or more physically unhealthy days.

The financial strain of missed work opportunities or out-of-pocket expenses for a loved one's care adds further stress, especially when finding affordable resources like respite care can be difficult. Almost 80% of people looking after loved ones report having regular out-of-pocket expenses related to caregiving. The average annual tally is $7,242.

About 4.5 million people in the US are members of the sandwich generation, meaning they’re between 2 generations that need care. These people are parenting children under the age of 18 and also providing care for their own parents. Balancing personal responsibilities like child-rearing or self-care gets complicated. Many caregivers sacrifice their own health needs while supporting loved ones.

Navigating changes

Becoming a primary caregiver involves navigating significant life changes. It's normal to experience a range of feelings. The key is allowing yourself to adapt. Make self-care a priority by carving out personal time. Also try practicing stress-relieving activities like exercise or meditation.

Plus, it’s important to discuss role changes with family. This can help set expectations and prevent misunderstandings. Embracing this transition with patience and self-compassion can make the change easier.

Preparation and confidence-building

Preparation creates a strong foundation for caregiving. Start by educating yourself about the care recipient's specific condition requirements. You may need to consult medical professionals or join a support group to get a full understanding.

Then focus on developing hands-on caregiving. Look for training opportunities on topics like providing personal care and managing behaviors. Ask as many questions as you need to, and fill any knowledge gaps.

Remember to celebrate small wins and achievements. Positive self-talk reinforces a sense of capability in the caregiving role. Keep trusted friends and family up to date on your progress so they can encourage you as well.

How Uber Health can help your caregiving journey

The caregiving path is demanding—and rewarding. As you navigate this, remember that you don't have to go it alone. Seeking out support services and resources can make all the difference.

Consider exploring how Uber Health can help you:

  • Simplify logistics: In just a few steps, help your loved one arrange transportation for appointments.
  • Save time: You can set up rides in the Uber app for your loved one, so time and distance aren’t barriers to care.

These articles are provided for educational and informational purposes only and do not constitute providing medical advice or professional services. The information provided should not be used for diagnosing or treating a health problem or disease, and those seeking personal medical advice should consult with a licensed physician. Always seek the advice of your doctor or other qualified health provider regarding a medical condition. If you think you may have a medical emergency, call your doctor or dial 911 immediately. No physician-patient relationship is created by these articles. Neither Uber nor its employees, nor any contributor to these articles, makes any representations, express or implied, with respect to the information provided herein or to its use.